A Person is More than their Diagnosis

//A Person is More than their Diagnosis

A Person is More than their Diagnosis

The Use of Individual Profiles to Guide Skill Training

By Scott Allen, Psy.D. Director of Psychological Services CLE Austin

Images, stereotypes, and ideas of diagnoses, we all have them. If I were to name a few, I imagine that a few images might be conjured in your head. For example, if I mentioned Attention-Deficit/Hyperactivity Disorder (ADHD), you might picture a boy running around the room while a teacher is struggling to teach a class. If I brought up the term, Reading Disorder, you might picture a young girl reading a series of letters in the wrong order. If I said, “he has an anxiety disorder,” you might picture a man struggling with leaving the house, shivering in a corner.

Neurodiversity at CLE Austin

We might miss the people who look like they are attending perfectly when they are not processing lesson material, those who struggle with “translating” written words to oral language, and those who worry “just a little more” about upcoming tests.

Prior to working at CLE, I spent a substantial part of my training and career completing diagnostic assessments and recommending services for people of varying ages. I’ll never forget the time that I completed an assessment on a middle-school-aged boy with an Autism-Spectrum Disorder who was quite communicative and exhibited no significant behavioral issues, well at least disruptive behaviors. He was just above the threshold for an autism-spectrum disorder on my measures and was displaying mild, but significant difficulties with communication, socialization, and learning in a typical classroom environment. I completed his assessment and presented my results in an IEP (Individualized Education Program) meeting with school officials and the student’s family. I can remember the gasps in the room when I reported that the student met criteria for an autism-spectrum disorder (then Asperger’s) and one of the school officials saying, “but he can talk.” Masking my frustration, I went into a full description of autism-spectrum disorders and talked about the range of individuals within that spectrum.

Neurodiversity at CLE AustinOne of my colleagues puts it best when she states “when you’ve met one person with [a disability], you’ve just met one person with [that disability].”

Diagnoses can be helpful in a few significant ways. They often provide a concise description of the individual and may guide some of the interventions that may be used. They are also useful toward qualifying individuals for services that are, in turn, helpful toward working on vital skills across areas of functioning.

However, diagnoses can also be viewed as labels, and they are often one of the first aspects that medical professionals, mental health professionals, and educators learn about clients/patients/students. As with other descriptors (e.g., IQ measures, academic scores, subjective reports), we can be quick to form schemas (preconceived sets of ideas) about someone based on those first impressions. Diagnoses provide very limited information and should not be the sole focus in work with individuals with disabilities. For the most part, mental health diagnoses involve challenges that are variations in typical human behavior.

Skill-Directed Approach

I recommend that people in the helping professions utilize a skill-directed approach rather than a diagnosis-focused approach in working with individuals across the range of neurodiversity. Questions of focus can include:

  • What are the goal skills for the individual based on wants and needs?
  • How can we break apart goal skills to reachable/manageable benchmarks or component skills?
  • What skills have already been mastered and what skills can we build upon those mastered skills?
  • What are the barriers to achieve the goal skills of the individual? How can we overcome or accommodate for these barriers?
  • What are the prerequisite skills for the goal skills (example: learning how to have a traditional date when someone struggles with conversational skills will be very difficult)?
  • How can we teach required skills in a way to optimize skill mastery?
  • How do we assess/measure progress?
  • How can we ensure that skills are generalizable across locations, audience, and activities?

Neurodiversity at CLE AustinOver to course of my career, I have noticed myself moving from a diagnostic focus to a skill-based focus in my work with clients. Sure, the individual’s diagnosis is part of their profile, but it can be very limiting to view the individual solely through the lens of the diagnosis. People are not their diagnoses; their diagnoses are part of them.

The lens that I consistently use with participants at CLE is “what skills does this individual need to learn in order to be successful in the ‘Real World?'” The use of this lens helps our participants, their families, and our team promote upward mobility in skill development in our participants.

2017-11-29T09:37:53+00:00 October 31st, 2017|News|0 Comments

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